After dealing with this journey and it’s challenges for nearly 13 years it has been a normal conversation in my family and has become part of the regular check up process and routine. After finding out the tumour had grown further in 2020 I decided that the best way to tell my daughter, who was 2 at the time, was to be honest and tell her exactly what was happening and what the plan was. I have continued to talk to her about everything along the way and keep her involved.
By telling her the truth she has been able to work through and deal with it in her own way. I am extremely proud of her for showing so much resilience and always being there when I am upset or feel defeated.
The night before my latest surgery I broke down in tears in her room whilst reading her a book and she turned to me and said “mum you have got this be brave!” - this is exactly what I needed to hear and I continually think of this moment whenever I am feeling flat.
She has continued to surprise me with how strong she is and continues to ask so many questions:
- “Mummy why did you have something in your head?”
- “Are they going to blow the balloon up in your head?”
- “Mummy do you have pain?”
She even explains to other people that I have a balloon in my head to stretch my skin so they can replace my bone. If I ever need a boost or motivational talk she is the one that I turn to, she is what pushes me to get through day in and day out!
I will be forever grateful for having her in my life along with my hubby and supportive family members and friends - this is the true power of resilience!
Comments